Medicaid Infrastructure Grant
Research Assistance to States
Log In   
Resources


       Bookmark Site 

   Provide Feedback
Resources 
Resources include links to qualitative research content such as reports, issue briefs, and reference guides, as well as quantitative information from data sources and data tables to help you find answers to your research questions.
 
Clicking a link will take you out of the MIG-RATS website to the new web location.
 
  View Full Category List 
Viewing Key Topic(s): Viewing State(s):
Data Sources          
Here you'll find links to federal agency datasets (CMS, SSA) and state-level tables and figures (Kaiser Foundation), which are easy to lookup.
American Foundation for the Blind (AFB)      
http://www.afb.org
The American Foundation for the Blind (ABF) website includes information, links, and publications in the areas of Accessibility, Public Policy, Events, Publishing, Research, and Consulting. AFB's Policy Research department produces and interprets valuable statistics about all nonmedical aspects of blindness and visual impairment in order to better understand the demographic characteristics of the visually impaired community. This department is one of the few think tanks dedicated to sorting through the maze of survey data collected by the U.S. Census Bureau and other national agencies. Reports include "The Social and Economic Status of Working-Age Adults (21-64) with Sensory Disabilities".
 
Key Topic(s) - Employer Research, Disability Research

CDC National Center for Health Statistics (NCHS)      
http://www.cdc.gov/nchs/fastats/osh.htm
NCHS Fast Stats A to Z: Work-Related Injury/Occupational Injury section.

CDC: Behavioral Risk Factor Surveillance System (BRFSS)      
http://www.cdc.gov/BRFSS/
The Behavioral Risk Factor Surveillance System (BRFSS) is the world’s largest, on-going telephone health survey system, tracking health conditions and risk behaviors in the United States yearly since 1984. Conducted by the 50 state health departments as well as those in the District of Columbia with support from the CDC, BRFSS provides state-specific information on the prevalence of disability, activity limitations, and other chronic health conditions. Go to the "State Prevalence Data" link.
Key Topic(s) - Disability Research

CDC: Center for Health Statistics      
http://www.cdc.gov/nchs/
The Centers for Disease Control's National Center for Health Statistics', a rich source of information about America’s health. As the Nation’s principal health statistics agency, they compile statistical information to guide actions and policies to improve public health.
 
CDC Fast Stats A to Z:  Work-Related Injury/Occupational Injury section.
 
The National Health Interview Survey (NHIS) is sponsored by the National Center for Health Statistics (NCHS). The survey is a nationally representative sample of the resident civilian, non-institutionalized U.S. population, both children and adults. It does not include residents of long-term care facilities, persons on active duty with the Armed Forces (though their dependents are included); or U.S. nationals living in foreign countries. The NHIS has been conducted annually since 1957. Sampling and interviewing are done continuously throughout the year.
 
Series 10 reports include annual basic survey estimates for various population subgroups, including those defined by age, gender, race, family income, and other variables. Separate reports are issue for the U.S. population, the adult population, and children.
 
The National Health Interview Survey on Disability (NHIS-D) was sponsored by the National Center for Health Statistics (NCHS). Unlike the annual NHIS, the NHIS-D was conducted only once beginning in 1994, in two phases. The Phase 1 Disability questionnaire was administered to respondents as a supplement to the regular annual NHIS (the "core") in 1994-5. It elicited information on disability for members of each household surveyed, and was used a screening device for Phase 2, the "Disability Followback Survey" (DFS). The DFS was administered to people who were identified as having disabilities through the Phase 1 NHIS-D and also by their responses to disability-related questions in the core NHIS. Phase II was conducted several months after the core NHIS and Phase 1 interviews and lasted from 1994 through 1997.

CDC: Morbidity and Mortality Weekly Report      
http://www.cdc.gov/mmwr
While the main disabilities page on the CDC site has a focus on developmental disabilities through the MMWR publication, they also produce statistics on the prevalence of work disability.
 
Key Topic(s) - Disability Research

Census      
http://www.census.gov/hhes/www/disability/disability.html
This is the main page for disability datasets from the U.S. Census and new reports or briefs. Also, there is a useful "Links to Related Sites" on the right side of the page.

Census - American FactFinder      
http://www.census.gov/main/www/cen2000.html
2000 Census: American FactFinder. A portal to the Summary Files that allow users to conduct data searches down to the block group level. Summary File 3 includes disability data collected through the "long form" questionnaires.

Census - State and Local Quickfacts      
http://quickfacts.census.gov/qfd/

This site provides summary tables of the most requested data for states and counties based on the 2000 Census.

Census Bureau Disability Portal is the gateway to on-line Census publications relevant to disability, including step-by-step instructions for using Summary File 3.

Disability Status: 2000 is a Census 2000 brief that summarizes characteristics of the civilian non-institutionalized population over the age of 5 with disabilities.

Public Use Microdata (PUMS) for the 2000 Census: include data for a sample of long-form data for each state.

PUMS files include state-level Census 2000 data containing individual records of the characteristics for a 5 percent sample of people and housing units.

Public Use Microdata (PUMS) for the 2000 and 2001 Supplementary Surveys


CMS Data Compendium       
http://www.cms.hhs.gov/DataCompendium
This CMS website provides summary tables of Medicare utilization and enrollment by state. Online editions are available for 2002, 2003, and 2006.

Cornell University - Disability Statistics      
http://www.DisabilityStatistics.org
Cornell University, School of Industrial and Labor Relations. This website is a treasure trove of statistics and rigorous data and information on disability.
Key Topic(s) - Disability Research

Current Population Survey (CPS)      
http://www.bls.census.gov/cps/cpsmain.htm
The Current Population Survey is a monthly longitudinal survey conducted by the Census for the Bureau of Labor Statistics, U.S. Dept of Commerce. In March, a supplement called the Annual Demographic Supplement is added to the basic CPS. This part of the CPS is of particular interest to disability statistics researchers. The March supplement collects data on work experience, income, non-cash benefits, and migration, as well as basic monthly demographic and labor force data.

Disability Research Institute      
http://www.ric.org/research/outcomes/social_security.php
The Disability Research Institute is a cooperative project between the U.S. Social Security Administration and the University of Illinois, Urbana-Champaign. The central purpose of the DRI is to conduct research and evaluations, disseminate information on disability topics, and inform policymakers and the public in understanding policies as they relate to people with disabilities and programs under the Social Security Act. Current research projects include "The Business of Employing People with Disabilities: Four Case Studies".
Key Topic(s) - Employer Research, Disability Research

Disability Statistics Center (University of California—San Francisco)      
http://www.dsc.ucsf.edu

Institute for Health and Aging at the University of California, San Francisco (UCSF). Through September 2003, the NIDRR-funded Center produced and disseminated policy-relevant statistical information on the demographics and status of people with disabilities in American society. Research materials and reports are still available on the website.

Listing of center publications on disability statistics

Locations of disability data

U.S. Decennial Census / Supplementary Surveys / American Community Survey

Survey of Income and Program Participation (SIPP)


EconPapers      
http://econpapers.repec.org/
A quick search brings up 100 papers on work-related disability. An example is the Michigan Disability Prevention Study on the impact of various employer policies and practices on the prevention and management of workplace disability.
Key Topic(s) - Employer Research, Disability Research

InfoUse: Access to Disability Data      
http://www.infouse.com/disabilitydata/home/index.php
The InfoUse website has been designed for use in research on disability in the United States, as a product of the Center on Access to Disability Data, a project funded by the National Institute on Disability and Rehabilitation Research (NIDRR). The website provides access to four major reports/chartbooks, including one on Work and Disability.
Key Topic(s) - Disability Research

Kaiser Foundation – State Health Facts      
http://www.statehealthfacts.org
This is a superb, user-friendly website for state facts and statistics! Be sure to bookmark this site for quick tables of Medicaid enrollment, disability, and demographics by state.
Key Topic(s) - Disability Research

Kaiser State Health Facts       
http://www.statehealthfacts.org
This website, sponsored by the Kaiser Family Foundation, provides quick lookups and user-friendly access to state-level Medicaid and Medicare utilization data as well as demographic characteristics in a tabular or graphical format

Labor Force Statistics from the Current Population Survey (CPS)      
http://www.bls.gov/cps/cpsdisability.htm
In June 2008, questions were added to the Current Population Survey (CPS) to identify persons with a disability in the civilian noninstitutional population age 16 and older. The addition of these questions allowed BLS to begin releasing monthly labor force data from the CPS for persons with a disability. Support materials that provide information on comparisons with other data sources, variability of the data, and the types of data are also available.
Key Topic(s) - Disability Research

Medical Expenditure Panel Survey (MEPS)      
http://www.meps.ahrq.gov/mepsweb/
The Medical Expenditure Panel Survey (MEPS) is a set of large-scale surveys of families and individuals, providers, and employers across the United States. MEPS (Household Component) includes summary data tables on health insurance coverage, cost and use of health care.

http://www.meps.ahrq.gov/mepsweb/data_stats/MEPS_topics.jsp?topicid=9Z-1
The public sources for health insurance identified in the MEPS include Medicare, TRICARE, Medicaid, and SCHIP.  Reports and data files with annual and monthly insurance indicators, experience with public plans, and more can be downloaded for further analyses.
Key Topic(s) - Disability Research

Monthly Data Series on the Employment Status of People with a Disability      
http://www.bls.gov/cps/cpsdisability.htm
In June 2008, questions were added to the Current Population Survey (CPS) to identify persons with a disability in the civilian noninstitutional population age 16 and older. The addition of these questions allowed BLS to begin releasing monthly labor force data from the CPS for persons with a disability. The collection of these data is sponsored by the Department of Labor’s Office of Disability Employment Policy. Publication of CPS disability data began in February 2009 with the issuance of labor force data for January 2009.
Key Topic(s) - Disability Research

OASDI Beneficiaries by State and County, 2007      
http://www.socialsecurity.gov/policy/docs/statcomps/oasdi_sc/2007/index.html

This annual publication provides data on the Social Security population at the local level. It presents basic program data by type of benefit (retirement, survivors, and disability) and category of beneficiary (retired and disabled workers, wives and husbands, widows and widowers, and children).

Key Topic(s) - Disability Research

ResDAC - University of Minnesota       
http://www.resdac.umn.edu/medicaid
This website includes technical references for Medicare and Medicaid datasets including data element dictionaries and public-use files. It’s not designed for quick lookups. Data geeks are welcome!!!
Key Topic(s) - Disability Research

Research Information for Independent Living      
http://www.getriil.org/
Research Information for Independent Living (RIIL), a RTC/IL at the University of Kansas and (ILRU) project, was developed with a NIDRR grant. The site contains links to research briefs and disability statistics on employment, benefits, and PAS.
Key Topic(s) - Personal Assistive Services (PAS), Disability Research

Return on Investment Calculator: A Tool for Analyzing State Investment in Direct Care Worker Wages      
http://www.ptpllc.com/clients/phi/roi/

The Return on Investment calculator allows states (and the District of Columbia) to analyze the economic and social impact of additional investment in the wages of direct-care staff working in their personal care services programs. Designed to incorporate a wide range of factors -- including the size of a proposed wage increase, staff turnover costs and retention rates, and issues related to implementation design -- the on-line calculator provides state policymakers with an easy-to-use tool for identifying the real costs and benefits of a wage increase. This information should help states to identify how to most effectively allocate resources in their efforts to stabilize their direct-care workforce and, thereby, strengthen their personal care service infrastructure.

Key Topic(s) - Personal Assistive Services (PAS)

SSA: Statistical Compilations on SSI and SSDI      
http://www.ssa.gov/policy/docs/statcomps/
This link will take you to the SSA's Office of Policy data section. It contains SSA produced reports on the Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) programs, including state-level aggregations.
Key Topic(s) - Disability Research

State Agency Data      
http://www.statedata.info/
This website generates customized charts of state, national, and individual disability data. The site currently includes data sets from state mental retardation/developmental disabilities agencies, the Rehabilitation Services Administration, the Social Security Administration, and the U.S. Department of Labor. StateData.info automatically creates accessible text versions of each chart.

State Chart Book on Wages for Personal and Home Care Aides, 1999-2008      
http://phinational.org/policy/wp-content/uploads/phi_state_chartbook_phca_wages_99-08.pdf

The State Chart Book on Wages for Personal and Home Care Aides, 1999-2008, prepared by PHI, provides information on the wages received by Personal and Home Care Aides (PHCA) in all 50 states, the District of Columbia and the nation over a 9-year period.

Key Topic(s) - Personal Assistive Services (PAS), Disability Research

SUNY at Buffalo: Cornucopia of Disability Information       
http://codi.buffalo.edu
Cornucopia of Disability Information is the main page of the University at Buffalo (SUNY), School of Public Health and Health Professions’ website. It consists of both an Internet Directory of Disability Information and a repository of electronic disability documents, dating back to the early 1990s. There are links to disability statistics, employment, government documents, and disability directories.
Key Topic(s) - Disability Research

Survey of Income and Program Participation (SIPP)      
http://www.bls.census.gov/sipp/
The Survey of Income and Program Participation (SIPP) is sponsored by the U.S. Census Bureau. Its purpose is to collect information on source and amount of income, labor force participation, program participation and eligibility data, and general demographic characteristics of individuals and households in the U.S. SIPP data are used to measure the effectiveness of government programs, to estimate future costs and coverage for these programs, and to provide improved statistics on the distribution of income in the U.S.

Ticket to Work at the Crossroads: A Solid Foundation with an Uncertain Future      
http://www.mathematica-mpr.com/publications/PDFs/TTW_crossroads.pdf
The Ticket to Work and Self-Sufficiency program (TTW) was designed to enhance the market for services that help SSI and SSDI beneficiaries successfully enter the workforce. This report looks at how well the TTW market functions and the extent to which the introduction of TTW changed enrollment in employment-support services, employment, and receipt of SSDI or SSI benefits.

The study found that program participation remains low but continues to grow, and survey findings indicate substantial potential for growth in participation. In addition, new payment regulations for providers may breathe new life into the market.
 
 
The Technical Appendices of this report are a good source for statistics on participation in the TTW program.
 
Key Topic(s) - Disability Research

UCSF: Disability Statistics Center       
http://dsc.ucsf.edu/main.php
The Disability Statistics Center at the University of California at San Francisco produces and disseminates policy-relevant statistical information on the demographics and status of people with disabilities in American society. The Center is based at the Institute for Health and Aging at the University of California, San Francisco (UCSF). It receives funding from the National Institute on Disability and Rehabilitation Research (NIDRR).
Key Topic(s) - Disability Research

United Nations Statistics Division - Disability Statistics      
http://unstats.un.org/unsd/disability/introduction.asp
United Nations Statistics Division - Disability Statistics This site provides a statistical reference and guide to national sources of disability, basic disability prevalence rates, and questions used in each national survey to identify persons with disabilities. The data available on this site are in the United Nations Disability Statistics Database, version 2 (DISTAT-2).

University of Minnesota: Research and Training Center on Community Living       
http://rtc.umn.edu/main/
The Research and Training Center on Community Living provides research, evaluation, training, technical assistance and dissemination to support the aspirations of persons with developmental disabilities to live full, productive and integrated lives in their communities.

http://rtc.umn.edu/statistics/
A major activity of the RTC is to analyze various data sets to learn about the status and characteristics of individuals with disabilities in the United States.
Key Topic(s) - Youth in Transition, Disability Research

University of Montana: Research and Training Center on Disability in Rural Communities       
http://rtc.ruralinstitute.umt.edu/
The U.S. Department of Education funds the Research and Training Center on Disability in Rural Communities to explore issues important to the 12.5 million rural Americans with disabilities and develop solutions to the problems they encounter in accessing telecommunications, becoming effective self-advocates and community leaders, and in living independent, healthy lives. The site includes links to demographic data and publications, including Progress Report #8: part of the first National Study of People with Disabilities Who are Self-Employed.
Key Topic(s) - Disability Research

US Department of Labor: BLS      
http://www.bls.gov/data/home.htm
This page of the Bureau of Labor Statistics (BLS) website is the starting point for employment , wage, and earnings data.
Key Topic(s) - Disability Research

VCU: Rehabilitation Research and Training Center on Workplace Supports and Job Retention       
http://www.worksupport.com/
The Rehabilitation Research and Training Center, supported by the Virginia Commonwealth University, focuses on assisting individuals with disabilities maintain employment and advance their careers. The emphasis is on those who are unemployed, underemployed or at risk of losing employment.
Key Topic(s) - Benefits Counseling, Employer Research, Disability Research

WVU: International Center for Disability Information       
http://www.icdi.wvu.edu/disability/tables.html
The International Center for Disability Information (ICDI) at West Virginia University has an easy-to-use website to access disability tables, including a breakdown by categories for each state. In addition they have an extensive Untangling the Web resources list at http://www.icdi.wvu.edu/Others.htm
Key Topic(s) - Disability Research